Rachael was born a few days past her due date, the most beautiful little girl in the whole wide world. As I have NF1 myself, I knew what it meant when she started developing café au lait spots at just a couple of months old. As she grew, the outlook was not good, as she did not thrive as other children her age.
Even with intervention from physiotherapists and speech and occupational therapy, she was still diagnosed with global developmental delay a few months before her 4th birthday. As the years progressed, Rachael has struggled with balance and coordination issues, core strength issues, fine and gross motor skills. Riding a 2 wheeler bike and doing lots of writing at school are still difficult for her, as is walking great distances, as she is flat footed and walks on the inside of her feet.
We were fortunate enough to find a place that has customised a specialised 3 wheeler for her, and are hoping to obtain a small laptop computer to help her with her school work.
Rachael also has ADHD, secondary to the NF1, and some of the stuff she has got up to has made life very interesting.
She is a sweet, delightful girl and will always be my little princess, I am so proud of the way she has moved through her struggles, all the time with a smile on her face