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LoveQuilts Australia - Spencer's quilt

Spencer's quilt    (Quilt Completed)

Born:January 2016
Illness: Beckwith-wiedemann syndrome

Theme: Transport

Quilt delivered: 7th Sep 2018
Photo of Spencer

Thank you

Thank you for your contribution to Spencer's beautiful quilt. He couldn't be happier.



Finished photos


Photo of Spencers quilt

Photo of Spencers quilt

Photo of Spencers quilt

Photo of Spencers quilt

Photo of Spencers quilt


Quilted by: Diana

Individual squares

Cross stitch square for Spencer's quilt
Stitched by: Debbie (+)
Submitted: Feb 2015

Cross stitch square for Spencer's quilt
Stitched by: Diana Tanner (+)
Submitted: Jul 2018

Cross stitch square for Spencer's quilt
Stitched by: E.E. (Beth) Filmer (+)
Submitted: Jun 2015

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon (+)
Submitted: Nov 2015

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon (+)
Submitted: Jun 2017

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon (+)
Submitted: Sep 2017

Cross stitch square for Spencer's quilt
Stitched by: Janeene E (+)
Submitted: Aug 2016

Cross stitch square for Spencer's quilt
Stitched by: Janet Ramsden (+)
Submitted: Mar 2015

Cross stitch square for Spencer's quilt
Stitched by: Jillian (+)
Submitted: May 2015

Cross stitch square for Spencer's quilt
Stitched by: Judith Saebel (+)
Submitted: Jul 2015

Cross stitch square for Spencer's quilt
Stitched by: Kylie Moran (+)
Submitted: Mar 2018

Cross stitch square for Spencer's quilt
Stitched by: Marie A (+)
Submitted: Mar 2016


Fabric

Fabric for Spencer
Fabric for Spencer

Card

Card for Spencer
Stitched by: Beth Filmer

Biography

Spencer was born at 33 weeks with an omphalocele. His liver, bowel and bladder were outside his body. He spent his first 6 weeks in NICU, and had his first major surgery at 12 days old. At a few weeks old he was diagnosed with a rare genetic syndrome, called Beckwith-wiedemann syndrome.
At 6 months old Spencer had a life saving surgery on his jaw, due to airway obstruction. He was essentially suffocating himself due to a large tongue and small jaw, so surgery was necessary to extend the jaw and open his airway. Since that surgery, he has been unable to swallow safely and now requires a gtube for all his nutrition.
Spencer has struggled with severe sleep apnea, Laryngomalacia,epilepsy,ataxia,chronic respiratory illnesses and at 2 years old he's had 10 major surgeries. Spencer has appointments at the hospital almost weekly, and currently has a team of 22 specialists. Despite all of that, he's a beautiful and happy little boy who puts a smile on the faces of everyone around him.