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LoveQuilts Australia - Spencer's quilt

Spencer's quilt    (Quilt currently being assembled)

Born:January 2016
Illness: Beckwith-wiedemann syndrome

Theme: Transport

Quilt currently being assembled
Photo of Spencer

Biography

Spencer was born at 33 weeks with an omphalocele. His liver, bowel and bladder were outside his body. He spent his first 6 weeks in NICU, and had his first major surgery at 12 days old. At a few weeks old he was diagnosed with a rare genetic syndrome, called Beckwith-wiedemann syndrome.
At 6 months old Spencer had a life saving surgery on his jaw, due to airway obstruction. He was essentially suffocating himself due to a large tongue and small jaw, so surgery was necessary to extend the jaw and open his airway. Since that surgery, he has been unable to swallow safely and now requires a gtube for all his nutrition.
Spencer has struggled with severe sleep apnea, Laryngomalacia,epilepsy,ataxia,chronic respiratory illnesses and at 2 years old he's had 10 major surgeries. Spencer has appointments at the hospital almost weekly, and currently has a team of 22 specialists. Despite all of that, he's a beautiful and happy little boy who puts a smile on the faces of everyone around him.



Patterns


1.On The Road - Patricia Gaskin Designs (1989) ---Stitcher: Jillian, NORFOLK ISLAND
Received
Yellow classic truck - 1930 Roadster Pickup Model A (Ford)

2.Chart by Stoney Creek from Patterns Online Stitcher: Janet Ramsden, Brisbane QLD, Australia
Received
Yellow 1967 VW Beetle
http://www.patternsonline.com/patterns/pat.aspx?p=...

3.Maria Diaz Everyday Heroes- Sea king rescue helicopter and lifeboat (Ultimate Cards) Stitcher: Debbie, Bathgate, UK
Received
Sea King rescue helicopter and lifeboat

4.TV Stitcher Volume 2 Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
Received
Thomas the Tank Engine

5.Stitcher: Judith Saebel, Adelaide SA, Australia
Received

6.Quick&Easy Cross Stitch Mag. 40Stitcher: Elaine Dixon, Athens, Greece
Received
Speedway rider

7.Stitcher: Marie A, Hervey Bay QLD, Australia
Received

8.Stitcher: Janeene E, Hervey Bay QLD, Australia
Received

9.Stitcher: Elaine Dixon, Athens, Greece
Received

10.Stitcher: Elaine Dixon, Athens, Greece
Received
silverstudy@gmail.com

11.Stitcher: Kylie Moran, Bathurst, Australia
Received

12.LabelStitcher: Diana Tanner, Perth, WA, Australia
Received


Squares received

Cross stitch square for Spencer's quilt
Stitched by: Diana Tanner
Submitted: Jul 2018

Cross stitch square for Spencer's quilt
Stitched by: Jillian
Submitted: May 2015

Cross stitch square for Spencer's quilt
Stitched by: Janet Ramsden
Submitted: Mar 2015

Cross stitch square for Spencer's quilt
Stitched by: Debbie
Submitted: Feb 2015

Cross stitch square for Spencer's quilt
Stitched by: E.E. (Beth) Filmer
Submitted: Jun 2015

Cross stitch square for Spencer's quilt
Stitched by: Judith Saebel
Submitted: Jul 2015

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon
Submitted: Nov 2015

Cross stitch square for Spencer's quilt
Stitched by: Marie A
Submitted: Mar 2016

Cross stitch square for Spencer's quilt
Stitched by: Janeene E
Submitted: Aug 2016

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon
Submitted: Jun 2017

Cross stitch square for Spencer's quilt
Stitched by: Elaine Dixon
Submitted: Sep 2017

Cross stitch square for Spencer's quilt
Stitched by: Kylie Moran
Submitted: Mar 2018


Fabric

Fabric for Spencer
Fabric for Spencer

Card

Card for Spencer
Stitched by: Beth Filmer