Isla J's quilt (Quilt Coming Soon)
Isla is the purple fairy!
Isla was born in May 2013, and from the moment she was born things went wrong. Isla could not eat and failed to thrive. She was admitted to Westmead kids at 5 days old and spent the next 6 months in there as her second home. Isla had her first major surgery at 15 days old as her internal organs were reversed and we noticed other things that were different. We had an MRI which told us her brain was underdeveloped and she might not ever walk, talk eat etc. We were told Isla had microcephaly and this would cause a myriad of other issues as a result. To date Isla has never eaten and is actually on a continuous pump through her bowel as her stomach dosen't work. She has a severe intellectual impairment, has spastic quadriplegia, Cerebral palsy and as she grows more and more problems.