Maddison B's quilt (Quilt Coming Soon)
Favourite colour: yellow
Maddie was diagnosed at 10 days old with Jacobson Syndrome. This is a very rare chromosomal abnormality with about 200 diagnosed in the world. She spent more time in hospital than out in her first 9 months of life. She has had approximately 25 operations in her life on most parts of her body. She has Paris Trousseou Thrombocytopenia (a bleeding disorder) that puts her at high risk of internal bleeding. In September 2018 she had a major stroke in her cerebalum where she was not expected to live. As a result of this she cannot walk unaided, can barely talk, requires full assistance with feeding and personal care and has effectively lost all independence in every part of her life.