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LoveQuilts Australia - Jaxson S's quilt

Jaxson S's quilt   (Quilt Coming Soon)

Born:December 2011
Illness: Pharmacy resistant genetic focal epilepsy, intellectual disability, autism,

Theme: Dinosaurs


Quilt will open soon, keep checking back!
Photo of Jaxson S

Child Interests

Dinosaur, trains, blue


Biography

Jaxson's pregnancy was quiet horrendous. Pre term labour from 24 weeks till 36. Born healthy but, knew there was something not right. He was behind in his milestones. Never said a word til 5, never walked till 4, never sat till 18 months. His first seizure was at 2. He seizes over 500 times a day. His mobility is limited and muscles are week.
He is on a huge amount of medication, which isn't working. He is on oxygen, the lung specialists are investigating why, he has a multitude of genetic markers of unknown significance. He has swollowing issues and aspiration issues.
Hes a outgoing happy little boy who loves dinasours, trains and blue.