Braxton's quilt   (Quilt Completed)
Theme: Dinosaurs - realistic
Quilt delivered: 17th Nov 2023
Thankyou so VERY MUCH to you AMAZING bunch of people, last time you made Karter his military quilt and Now Braxy has received his BEAUTIFUL Dino quilt.
Brax is nearly 10, he was our rainbow baby after a miscarriage and he really is like sunshine in human form from the moment he was born he has endure more than many kids due to his and his brothers medical and disability needs.
When he was born at 35 weeks his brothers Tyler(only 4 at the time) and Karter (19.5 months oland an had spent most of those 19 months in and out of hospital).
When Brax was 6 weeks old karter suffered a severe regression where he suddenly lost the ability to suck and became extremely unwell and we spent 12 days in hospital before being sent hom with our 2nd long term feeding tube for Karter.
Brax was tiny and boarded with us in his little crib every time we had to be admitted sometimes for up to a month until he was 2.5years old.
He spent probably close to 95% of the first 2.5-3 years of his life being worn in my baby carrier from a few days old as there was no infant of sibling attahment to karters wheelchair pram. we would spend 5 hours a day 4 days a week on public transport (due to where we live having limited options so left at 545am for a 10am appt and not making it home until 6pm with a 4yo, 2yo and baby but Braxy never batted an eye he was the most easy going baby like he just knew i needed his calming presence) taking karter to Rehab as we didn't have a car for almost 2 years and so his feet barely touched the ground in his early life.
While friends kids were at play group and birthday paries with other babies/toddlers their age learning and making friends Brax was stuck attending alllll the appointments, hospital admissions, Therapies and his toys were often whatever we could make out of pamphlets and cafe items as I couldn't carry much for him from home.
He was later diagnosed autistic and also with Ehlers Danlos syndrome and regularly dislocates his joints and takes a long time to heal from injuries, like when he broke his leg it took 18 weeks to heal instead of rather 5-6 they originally told us.
Because of all the complexity in our lives he misses out on ALOT and he has been through so much more I won't share for someone so young but he has the Kindest most gentle sould and anyone who meets him adores him.
So thankyou from the bottom of my heart for making something so special just for him.
Stitched by: Sarah Warrener
Brax was born at 35 weeks and was quite small, he was diagnosed with ehlers danlos syndrome which badly effects his joints and will eventually cause significant arthritis as he ages, he has had more than a dozen dislocations and a severe fracture in his leg that took 18 weeks to heal that still causes him troubles years later, he was later diagnosed Autistic, with Adhd and an intellectual disability which effects his ability to learn, he is the happiest kindest most loving child and always looks out for everyone, he has watched his older brother suffer tremendous pain and trauma and has missed out on alot because of his brother's high needs including spending the majority of the first few years of his life as a sibling boarder while his brother was in and out of hospital. He's an incredible chess player and is a worthy opponent to his chess loving dad, he loves to build lego and this really helps him during theraoy sessions.
He never asks for anything and always wants to help everyone out and i would just love for him to have something special that's just for him to cherish.