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LoveQuilts Australia - Lucas's quilt

Lucas's quilt    (Quilt Open)

Born:April 2017
Illness: Chromosome 3q29 deletion

Theme: Cars, trucks, diggers

Date opened: 6th Apr 2021
Deadline: 29th Jul 2021

Photo of Lucas

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for Lucas

Theme details

Cars, trucks, diggers - WE HAVE ENOUGH TRUCKS/DIGGERS - NOW WE NEED CARS PLEASE.



Child Interests

Lucas love cars. And more cars. And some diggers and trucks and then more cars!
Cars are about his only interest at the moment and the one toy he will engage with.

He loves all bright colours. Lucas’s brother Spencer received a love quilt a couple of years ago (which is used every single night on his bed) Spencers quilt was transport themed so if possible a different backing is preferred but if they match that’s fine too! It will just make it easier for the boys to recognise which quilt is theirs.


Biography

Lucas was born full term, but very little, weighing only 5lbs. He spent 5 days in the special care unit on antibiotics and learning to feed before coming home to all of his brothers and sisters.
Once home we noticed Lucas was missing all of his milestones. He wasn’t babbling, wasn’t learning to roll over or sit, and didn’t really respond to people the way most babies do. I raised concerns at all of his maternal child health nurse appointments, and by 18 months we had a referral to a paediatrician. At this point he had only just learnt to sit, couldn’t stand up and was completely non verbal.
The paediatrician sent us off for hearing tests and did genetic testing. We got his hearing test done and found out Lucas has moderate to severe hearing loss. He now has hearing aids. The same day we got a phone call from his paediatrician to say his genetic results were back, and Lucas has a missing part of chromosome 3. For Lucas, this missing chromosome causes speech delay, developmental delays, learning disabilities and autism like traits.
In May 2019, Lucas got the flu. He had an 8 minute long seizure at home, stopped breathing and this was the start of his epilepsy journey. He has since had dozens of tonic clonic seizures, and hundreds of smaller myoclonic seizures. He is currently medicated, but the seizures haven’t stopped. The seizures aren’t related to his chromosome deletion, so now we are doing more in depth testing to figure out the cause.

Lucas started kinder this year with a full time aide for support and is loving every minute of it. He still has quite a severe speech delay, but is able to communicate verbally now. We have regular therapy for him, and he has come such a long way in the last 12 months. He is super resilient and we are so proud of him.



Patterns (2 stitchers needed)   (Sign up here)


1.The Stitch Patterns design Stitcher: Loraine, Perth, Australia
In Progress
Cement Mixer Truck 3

2.Own Design Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
In Progress
Articulated Truck in bright colours

3.PinoyStitch/Mini Cross stitch Stitcher: Barbara Berry, Adelaide, Australia
In Progress
Collection of little tractors and a digger

4.Set of 6 cross stitch patterns by The Stitch Patterns on Etsy n/aStitcher: Kay R, PA, USA
In Progress
Yellow Digger facing right bottom row - middle picture
https://www.etsy.com/listing/720172745/set-of-6-cr...

5.Set of 6 cross stitch patterns by The Stitch Patterns on Etsy n/aStitcher: Kay R, PA, USA
In Progress
Orange dump truck filled with mud bottom row - last truck
https://www.etsy.com/listing/720172745/set-of-6-cr...

6.Own Design Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
In Progress
Red Holden

7.My own pattern Stitcher: Mary, IL, USA
In Progress
Brightly colored race cars - simple pattern i designed.

8.Green car by Sam Hawkins Stitcher: Rebekah, Glen Carbon IL, USA
In Progress
Green Volkswagen Beetle type car
https://www.patternsonline.com/patterns/downloadpa...

9.Cyber stitchers, Stitcher: jean conway, Lowellville, ohio, USA
In Progress
Solstice convertable by jerry van horn
cyberstitchers.com

10.

11.

12.LabelStitcher: Diana Tanner, Perth, WA, Australia
In Progress


Squares received

None yet. (Quilt opened on 6th Apr 2021)