BiographyEvander was an easy pregnancy and labour, and for the first few weeks of life seemed to be completely normal and healthy in every respect except for a slightly swollen abdomen. At six weeks of age however we got a call to say that the hospital wanted to bring him in for further testing after an abnormal heel prick test result. A sweat test designed to measure sodium levels abnormally high levels of salt in Evander's sweat, indicating a positive result for Cystic Fibrosis.
At the time we weren't sure how much Evander's life would change, especially considering we hadn't even known he was sick. A few weeks later his pancreas lost the ability to digest food naturally, and since then has required digestive enzymes with every meal he eats (something that occurs eventually in almost every child with CF). We are lucky in that (except for one hospital admission, and daily vitamins, medicine, and preventative physio for his lungs) Evander has stayed mostly healthy in his day-to-day life so far. CF is a progressive illness and any sicknesses Evander gets must be treated aggressively with antibiotics and physio but medicine is coming a long way and we are hopeful for the future.
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