BiographySpencer was born at 33 weeks with an omphalocele. His liver, bowel and bladder were outside his body. He spent his first 6 weeks in NICU, and had his first major surgery at 12 days old. At a few weeks old he was diagnosed with a rare genetic syndrome, called Beckwith-wiedemann syndrome.
At 6 months old Spencer had a life saving surgery on his jaw, due to airway obstruction. He was essentially suffocating himself due to a large tongue and small jaw, so surgery was necessary to extend the jaw and open his airway. Since that surgery, he has been unable to swallow safely and now requires a gtube for all his nutrition.
Spencer has struggled with severe sleep apnea, Laryngomalacia,epilepsy,ataxia,chronic respiratory illnesses and at 2 years old he's had 10 major surgeries. Spencer has appointments at the hospital almost weekly, and currently has a team of 22 specialists. Despite all of that, he's a beautiful and happy little boy who puts a smile on the faces of everyone around him.
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