Slater C's quilt    (Quilt Completed)

Thank you

Slater’s quilt arrived last week, sorry I’m only sending the message now but we’ve been busy with hospital appointments. It arrived at the perfect time, we’ve had a bit of bad news. Slater is loosing his hearing because of one of the chemo drugs but in true Slater style he is handling it well (not so much for me)
He absolutely loves the quilt and it will be very handy for MRI days to help his anxiety when waking from GA. Here is a video of him opening it, please feel free to share it
Thanks so so much

Finished photos

Individual squares

Fabric

Card

Stitched by: Elaine Ainsworth

Biography

Slater was born a happy healthy boy, learning to walk at 11 months old and was hitting all appropriate milestones in his development. At 17 months old he started having trouble with his balance and his head was tilted to the left. After going to Drs for 3 weeks I took him to Gold Coast University Hospital where a MRI showed a large tumour in the back of his head wrapped around the brain stem, squashing the cerebellum and blocking the flow of the cerebral spinal fluid. Slater was flown by helicopter to Lady Cilento Children’s Hospital in Brisbane for emergency surgery to drain the fluid. One week later Slater underwent surgery on the tumour, unfortunately only 80% was removed with the remaining being inoperable. Surgery left Slater having to learn how to move his whole body again and unable to talk for 6 months. Slater has had 6 months of high dose chemo, 30 rounds of radiation and 6 months of oral chemo and an experimental drug.
He is still fed by tube and learning to eat and also has trouble with gross motor skills. Slater has just turned 4 and luckily the remaining tumour is stable at this stage, He now has 4 monthly MRI’s and lumbar punctures as the chance of it growing again or another tumour forming is extremely high. We live our lives in limbo waiting hoping that the monster doesn’t come back.