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LoveQuilts Australia - Cassian's quilt

Cassian's quilt    (Quilt Completed)

Born:April 2020
Illness: GMFCS 5 quadriplegic Cerebral Palsy

Theme: Wild Woodland Animals

Quilt delivered: 15th Mar 2023
Photo of Cassian

Thank you

Hi Diana and the Love Quilts team
Just wanted to let you know that we received Cassian’s AMAZING quilt and we are so very happy with it.
We have used it for his stretches and tummy time and now he’s being kept nice and warm with it as he sleeps. It feels like Cassian is getting hugs from people all over the world. He is one lucky boy and we will treasure this beautiful gift for his lifetime. Thank you so much!"



Finished photos


Photo of Cassians quilt

Photo of Cassians quilt

Photo of Cassians quilt

Photo of Cassians quilt

Photo of Cassians quilt


Quilted by: Diana

Individual squares

Cross stitch square for Cassian's quilt
Stitched by: Audrey Taylor (+)
Submitted: Jan 2023

Cross stitch square for Cassian's quilt
Stitched by: Barbara Berry (+)
Submitted: Sep 2022

Cross stitch square for Cassian's quilt
Stitched by: Diana Tanner (+)
Submitted: Jan 2023

Cross stitch square for Cassian's quilt
Stitched by: E.E. (Beth) Filmer (+)
Submitted: Sep 2022

Cross stitch square for Cassian's quilt
Stitched by: Elaine Ainsworth (+)
Submitted: Jan 2023

Cross stitch square for Cassian's quilt
Stitched by: Elaine Ainsworth (+)
Submitted: Jan 2023

Cross stitch square for Cassian's quilt
Stitched by: Hannah (+)
Submitted: Sep 2022

Cross stitch square for Cassian's quilt
Stitched by: Helga Fleming (+)
Submitted: Oct 2022

Cross stitch square for Cassian's quilt
Stitched by: Katherine Wong (+)
Submitted: Nov 2022

Cross stitch square for Cassian's quilt
Stitched by: Kathryn Ross (+)
Submitted: Jan 2023

Cross stitch square for Cassian's quilt
Stitched by: Kay R (+)
Submitted: Jul 2022

Cross stitch square for Cassian's quilt
Stitched by: Shelli Rippetoe (+)
Submitted: Nov 2022


Card

Card for Cassian
Stitched by: Beth Filmer

Biography

Cassian was born big and healthy after an uneventful pregnancy and birth. Unfortunately, at age 18 months Cassian suffered a drowning accident on 22/10/2021 where he went into cardiac arrest and had no heartbeat for approximately 45 minutes before being resuscitated and admitted to paediatric intensive care in an induced coma. On Monday the 25th Oct, we were told that he had gone too long without oxygen and that his injuries were most likely not survivable. We had Cassian baptised that night and received information about donating his organs before they reduced his coma medications to see if he would awake from the coma or would be brain dead.

The next morning, Cassian was moving his legs and opening his eyes for brief moments. At that time we were told he was not brain dead, however his survival was still not guaranteed as they were not sure he would be able to breathe independently without the ventilator and we had to decide whether to re-intubate him if it failed or make him comfortable and let nature take its course. He was extubated on the 28 October (6 days after the accident) and he had no issues whatsoever and was breathing almost immediately. Ever since, he has maintained his oxygen levels at between 95-100%.

Overall, Cassian spent around 8 weeks in hospital before being discharged. When he was discharged, he was in what they call a “minimally conscious state” where he lacked awareness of his surroundings and we were worried he would be in this state forever. Some people who suffer severe hypoxic brain injury move through this state as they recover and others stop recovery at this stage and never improve from this. We did not know what Cassian would do. He went for so long without oxygen they we knew his brain was severely damaged.

Thankfully, most likely due to neuroplasticity and the excellent care he received at the Adelaide womens and childrens hospital he did have further recovery, particularly cognitively and we now see lots of glimpses of the old Cassian. He recognises people, his eyes track, he cries and laughs and enjoys life. He can demand kisses and is cheeky and sneaky at times. It’s been a slow but steady process. He hasn’t recovered as much physically as he has cognitively, however as he cannot walk, crawl, sit, roll over or even hold his head up. Cassian developed severe spasticity in all four limbs and dystonic movements which is a huge challenge for him. He cannot eat orally due to an unsafe swallow and hypotonia in his core. He has epilepsy, which is thankfully well controlled with medications.

He was diagnosed with GMFCS 5 Cerebral Palsy in February as a result of the severe damage to his developing brain and we know that he will likely be severely disabled for the rest of his life, but we are grateful he is alive. He has physiotherapy, occupational therapy, speech therapy and hydrotherapy on a weekly basis, wears both hand and foot orthotics and is on 5 different medications.

Our lives revolve around Cassian’s care, but we wouldn’t have it any other way. Like most parents, we are so very proud of him and I’ll talk about him to anyone who listens.