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LoveQuilts Australia - Macey's quilt

Macey's quilt    (Quilt Closed)

Born:June 2014
Illness: Lissencephally, Lennox Gastute Syndrome, Cerebral Palsy and Rhabdomyosarcoma

Theme: Disney characters - all

Date opened: 26th Sep 2022
Date closed: 5th Oct 2022
Deadline: 23rd Feb 2023

Photo of Macey

Theme details

Disney characters - all - Please see "Child's interests and favourite colour" for a list of Macey's favourite characters. Other characters can also be included.



Child Interests

Macey loves Disney - especially Dory and all her friends. She also loves Sophia the first, Bluey, Moana and of course the usual Disney characters.
Her favourite colours and Blue, Purple and Pink, but honestly loves all colours.


Biography

Macey was born meeting all her milestones and generally a happy little lady. At 4 months she started having seizures and started to regress with her development. This lead to her diagnosis of Lissencephally, cerebral palsy and multiple seizure disorder. After multiple medications we found the right mix and Macey started thriving again. Full of smiles and loving being around her family and friends.
At the age of 3 Maceys eye began to droop. She had just started another medication for her seizures so we initially thought it was a result of that change. But it wasn’t getting any better and I could start to see a growth in the corner of her eye. After a visit to an eye specialist it was decided she needed an MRI. A day later we knew she had a tumour in her orbit. A biopsy a few days later and we knew it was cancer. Rhabdomyosarcoma.
Macey took on treatment like an absolute champion. As she isn’t verbal and already had so many other issues we weren’t sure how she would recover. But she did. She took on Chemo and although there were a few complications, she kicked cancer to the kerb. After a month of radiation treatment was officially finished. The tumour is still there, but dormant.
Unfortunately chemo has left it’s impact. Macey needs regular scans and reviews, she has monthly transfusions and multiple therapies. All that she gained before cancer was lost. She still isn’t able to eat orally, has lost the ability to sit independently and is completely wheelchair reliant. She is in hospital weekly for appointments and has multiple long stays every year.
But she smiles. She laughs. She loves to be around people and other kids. She shows anyone around her what resilience is.



Patterns


1.By Beth Filmer Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
Received
Moana at Sunset

2.Dory pattern from Love Quilts UK files Stitcher: Helga Fleming, Victor Harbour SA, Australia
In Progress
Dory from Finding Nemo

3.Squirt pattern from Love Quilts UK files Stitcher: Katherine Wong, CARLTON, Australia
Received
Squirt (the little turtle) from Finding Nemo

4.Own Design Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
Received
Bluey

5.Ideeapuntocroce n/aStitcher: Kay R, PA, USA
In Progress
Princess Sofia and her rabbit Clover
www.ideeapuntocroce.it

6.Cross Stitch Crazy Issue 64 - Leaflet Stitcher: E.E. (Beth) Filmer, Adelaide SA , Australia
Received
Nemo, Sheldon, Tad & Pearl

7.Pattern from Pinterest Stitcher: Susan Smith, Mortdale, Australia
In Progress
The 7 dwarfs

8.Sophia Stitcher: Rae C, Gwandalan, NSW, Australia
In Progress

9.Hachette works disney subscription Stitcher: Sarah Warrener, Wagga Wagga NSW, Australia
Received
Shiloutte mickey mouse in a heart

10.Https://www.etsy.com/au/listing/1233988539 Stitcher: Beth Linsdell, Morayfield, Australia
In Progress
Ariel - The Little Mermaid
https://www.etsy.com/au/listing/1233988539

11.Disney Cross stitch. Issue 3 Stitcher: Catherine Farr, Rockhampton, Australia
In Progress
Ariel on a rock

12.LabelStitcher: Rae C, Gwandalan, NSW, Australia
In Progress


Squares received

Cross stitch square for Macey's quilt
Stitched by: E.E. (Beth) Filmer
Submitted: Nov 2022

Cross stitch square for Macey's quilt
Stitched by: Katherine Wong
Submitted: Nov 2022

Cross stitch square for Macey's quilt
Stitched by: E.E. (Beth) Filmer
Submitted: Nov 2022

Cross stitch square for Macey's quilt
Stitched by: E.E. (Beth) Filmer
Submitted: Nov 2022

Cross stitch square for Macey's quilt
Stitched by: Sarah Warrener
Submitted: Dec 2022