BiographyLilli was born with “a hole in the heart”. Transfered to Randwick children’s hospital for specialist advice. Found out Lilli than had the diagnosis of 22q11.2 deletion syndrome. She had her first heart surgery when she was 4months old(4kg), second heart surgery at 9months and a tracheotomy was placed as well. Tracheotomy was removed at 4yrs old. She’s had multiple ent surgeries, dental surgeries(Westmead). At the moment Lilli has know been diagnosed with celiac and is going through multiple knee dislocations (heading to Randwick to see the bone doctor), cleft surgery (heading to Westmead for this in 3weeks). Lilli sees a paediatrician every 3months and is in a support unit at school(yr6).
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Patterns
| 1. | | Stitcher:
Mary Reynolds, Burnham, New Zealand
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| 2. | | Stitcher:
Mary Reynolds, Burnham, New Zealand
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| 3. | | Stitcher:
E.E. (Beth) Filmer, Adelaide SA , Australia
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| 4. | | Stitcher:
Pippa, Surrey, UK
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| 5. | | Stitcher:
Sonda M, OR, USA
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| 6. | | Stitcher:
PE, Perth, WA, Australia
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| 7. | Ariel by Merete Langseth from LQUK files | Stitcher:
Tamara, Canberra, Australia
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| Portrait of Ariel |
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| 8. | Merete Langseth UKLQ | Stitcher:
Rae C, Gwandalan, NSW, Australia
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| Princess Cinderella |
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| 9. | | Stitcher:
PE, Perth, WA, Australia
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| 10. | Moana in oval border (LQ uk files by Beth Filmer) | Stitcher:
Emma Gray, Crediton, UK
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| 12. | Label | Stitcher: Diana Tanner, Perth, WA, Australia
In Progress |
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