Harriet or “Hattie” was born at just 26 weeks and 1 day into pregnancy, and weighed a tiny 780grams at birth. Because of her extreme prematurity she required to be intubated for a while after birth, and then slowly progressed onto other oxygen support. Upon coming home after 3.5 months in hospital we thought she had no other issues.
Then we noticed when feeding her she would frequently stop breathing, and turn blue. Harriet also developed a constant wheeze. She was treated for bronchiolitis many times before it was found that her milk was going into her lungs causing infections, which wasn’t helping her already weak lungs.
Due to the aspiration issues Harriet has become tube fed since this time, starting with a NJ tube and then a surgically placed G/J tube.
Earlier this year we noticed that on any physical exertion Harriet would struggle to breathe, and become blue again. A bronchoscopy showed that most likely due to the breathing support needed at birth, her airway has become narrowed.
Luckily we’ve found ways to manage all this, although Harriet now experiences quiet a bit of medical trauma as a result.