Millie is the first born child to her parents. Before Millie could walk she could dance, and hasn't stopped since. She is a doting big sister and has a vibrant personality in which she loves to joke and make people laugh. Millie is a delight and pure princess, who loves ballet and spending time with her family.
In August 2022 Millie's symptoms began with increased thirst and urine output. Over the next year more symptoms added to the list, such as unexplained fevers, night sweats, diarrhea and abdominal pain.
In August 2023 Millie was referred for an abdominal ultrasound which found a 10x9x8cm tumour on her left adrenal gland. She was then referred to our state childrens hospital for further testing. further scans revealed that her skull was covered in many lesions and there was an additional lesion on one of her ribs. The posterior pituitary gland was also a dark spot in her brain and is not functioning. This lead to her dual cancer diagnosis.
Since then Millie has undergone 5 general anesthetics, a lumbar puncture, bilateral bone marrow biopsy's, central venous line insertion, craniectomy, nasogastric insertion and 10 cycles of chemotherapy.
Millie is a rare presentation and has been diagnosed with intermediate risk neuroblastoma and coexisting multifocal, multisystem (central nervous system involvement) langerhans cell histiocytosis (LCH). As a result of the LCH infiltration her central nervous system Millie has also been diagnosed with Diabetes Insipidus.
Millie faces another 6 week intensive block of treatment which includes weekly chemotherapy and 3 days of large dose steroids every week. After she has completed this block she will have another general anesthetic to perform repeat MRI and CT scans of her Brain, chest, abdomen and pelvis to check disease progression. After this she will face major abdominal surgery to remove the tumour that has encased her left kidney supply blood vessels, which is also very close to her aorta as the tumour has crossed her midline.